Caroline, a young adult treated with RYLAZE

Caroline (Actual Patient)

Online support and information is within reach

Ask the healthcare team about resources and support groups to help stay connected

The following resources are a starting place for accessing more information on living with acute lymphoblastic leukemia (ALL) and lymphoblastic lymphoma (LBL). Keep in mind, this list does not include all available resources and is not meant to replace conversations with the healthcare team. The healthcare team should always be the first source of information and advice.

American Childhood Cancer Organization logo

American Childhood Cancer Organization

American Childhood Cancer Organization (ACCO) began in 1970 by a group of parents whose children had been diagnosed with cancer. Today, ACCO is one of the largest grassroots, national organizations dedicated to improving the lives of children and adolescents with cancer as well as their families.

Cactus Cancer Society logo

Cactus Cancer Society

Cactus Cancer Society is an innovative nonprofit serving young adult cancer patients, survivors, and caregivers ages 18 to 45 years. They provide a full spectrum of free, innovative online wellness and support programs for young adults facing cancer, enabling them to have access to age-appropriate psychosocial survivorship support they deserve through a medium that fits their lifestyle. All of Cactus Cancer Society's programs and resources are uniquely accessible regardless of a patient’s specific diagnosis, geographic location, financial situation, or inpatient status.

Cancer SurvivorLink™ logo

Cancer SurvivorLink™

Cancer SurvivorLink™ is a website where childhood cancer survivors can learn about cancer survivorship, store important health documents, and share those documents with their healthcare providers.

Elephants and Tea logo

Elephants and Tea

Elephants and Tea's mission is to help adolescent and young adult (AYA) patients, survivors, and caregivers know they are not alone in their experience with cancer. They have the only magazine written for and by the AYA cancer community telling their story in their own words. The Elephant in the room is cancer. Tea is the relief conversation provides.

The Leukemia & Lymphoma Society® logo

The Leukemia & Lymphoma Society®

The Leukemia & Lymphoma Society® (LLS) is the world’s largest nonprofit health organization dedicated to curing leukemia, lymphoma, and other blood cancers, funding blood cancer research, and providing education and patient services.

Mattie Miracle Cancer Foundation logo

Mattie Miracle Cancer Foundation

Mattie Miracle Cancer Foundation is dedicated to increasing awareness of childhood cancer, education, advocacy, research, and psychosocial support services to children, their families, and medical personnel.

Together by St. Jude logo

Together by St. Jude

Produced by St. Jude Children’s Research Hospital, the Together by St. Jude™ online resource provides trusted information to anyone facing childhood and adolescent cancer, regardless of where the patient receives treatment. The website is available in a growing list of languages and offers comprehensive information, practical resources, and shared stories of hope and healing.

Jazz Pharmaceuticals is not responsible for the content included in these resources. The organizations above are independent from Jazz Pharmaceuticals.

When navigating ALL and LBL, learning from others living with the condition may help.
RESOURCES FOR YOUNG ADULTS

What is RYLAZE?

RYLAZE is a prescription medicine, given by intramuscular injection, that is part of a chemotherapy regimen used to treat adults and children 1 month or older who have acute lymphoblastic leukemia (ALL), a type of blood cancer that affects the white blood cells that help fight infection, and lymphoblastic lymphoma (LBL), a type of non-Hodgkin lymphoma that also affects white blood cells. RYLAZE is used in patients who have had an allergic reaction to E. coli asparaginase.

IMPORTANT SAFETY INFORMATION

RYLAZE should not be given to people who have:

  • History of serious allergic reactions to RYLAZE
  • History of serious swelling of the pancreas (stomach pain), serious blood clots, or serious bleeding during previous asparaginase treatment
  • Severe damage to the liver

RYLAZE may cause serious side effects, including:

  • Allergic reactions (a feeling of tightness in your throat, unusual swelling/redness in your throat and/or tongue, rash, or trouble breathing), some of which may be life-threatening
  • Swelling of the pancreas (stomach pain), which, if left untreated, may be fatal
  • Blood clots (may be experienced as headache, arm or leg swelling, shortness of breath, or chest pain), which may be life-threatening
  • Bleeding, which may be life-threatening
  • Liver problems (may result in abnormal laboratory values) or, in severe cases, hepatic veno-occlusive disease (reduced blood flow in the liver)

Contact your doctor immediately if any of these side effects occur.

Some of the most common side effects with RYLAZE include:

  • Liver problems
  • Nausea and vomiting
  • Bone and muscle pain
  • Infection
  • Tiredness
  • Headache
  • Fever with low white blood cell count
  • Fever
  • Bleeding
  • Mouth swelling (sometimes with sores)
  • Pain in the abdomen
  • Decreased appetite
  • Allergic reactions
  • High blood sugar levels
  • Diarrhea
  • Swelling of the pancreas
  • Low levels of potassium in your blood

RYLAZE can harm your unborn baby. Inform your doctor if you are pregnant, planning to become pregnant, or nursing. Females of reproductive potential should use effective contraception (other than hormonal contraceptives) during treatment and for 3 months following the final dose. Do not breastfeed while receiving RYLAZE and for 1 week after the final dose.

Tell your healthcare provider if there are any side effects that are bothersome or that do not go away.

These are not all the possible side effects of RYLAZE. For more information, ask your healthcare provider.

Call your doctor for medical advice about any side effects.

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088 (1-800-332-1088).

Please see full Prescribing Information and discuss with your doctor.

What is RYLAZE?

RYLAZE is a prescription medicine, given by intramuscular injection, that is part of a chemotherapy regimen used to treat adults and children 1 month or older who have acute lymphoblastic leukemia (ALL), a type of blood cancer that affects the white blood cells that help fight infection, and lymphoblastic lymphoma (LBL), a type of non-Hodgkin lymphoma that also affects white blood cells. RYLAZE is used in patients who have had an allergic reaction to E. coli asparaginase.

IMPORTANT SAFETY INFORMATION & APPROVED USE

RYLAZE should not be given to people who have:

  • History of serious allergic reactions to RYLAZE
  • History of serious swelling of the pancreas (stomach pain), serious blood clots, or serious bleeding during previous asparaginase treatment
  • Severe damage to the liver

RYLAZE may cause serious side effects, including:

  • Allergic reactions (a feeling of tightness in your throat, unusual swelling/redness in your throat and/or tongue, rash, or trouble breathing), some of which may be life-threatening
  • Swelling of the pancreas (stomach pain), which, if left untreated, may be fatal
  • Blood clots (may be experienced as headache, arm or leg swelling, shortness of breath, or chest pain), which may be life-threatening
  • Bleeding, which may be life-threatening
  • Liver problems (may result in abnormal laboratory values) or, in severe cases, hepatic veno-occlusive disease (reduced blood flow in the liver)